So Fall is here

   Fall is here and like most moms this equates to the dreaded flu and cold season.But for a caregiver of a young person that is on chemo or in fact any person that is on chemo this means so much more. We have to deal with the unpredictably of whats coming ahead. And tackling it head on with a plan.
This is my first cold season with her on chemo and I am so scared. I remember last season when I use to walk into her daycare and  saw a note posted on a door saying what communicable diseases a kid has caught and what to look for, or the notes from school saying the same thing.  Any bug can be deadly to her, and winter makes you really aware of it.
 This season just means a whole lot of unpredictably. In the past, when my daughter had a fever I could have given her some Tylenol and/or some cough medicine, set up a well appointment for later in the day and the next day she will be back in school. But now, a fever means a call to her oncologist an automatic trip to the ER to get X-Rays, blood work and missed days from school while she is trying to recover. Tylenol  for a fever is not even a option for her with out going through these steps.
 This year, like every other year, she had the flu vaccine. A couple of days later she was coughing day and night.  I called her doctor and she said I could give her some cold medicine because she didn't have a fever.  After a day or two of not seeing any improvement of her coughing I took her in to see a doctor. The doctor diagnosis her with indoor allergies. I never saw that coming, she never had allergies before but now she does.I believe she does have it because now the coughing has calm down a lot.
 While, I try to make Chemo-Day a "special day", meaning that we have breakfast, and lunch out  and after chemo we head to the  movies afterwards. Between chemo, other doctors appointments and specialist  she misses quit a number of days of school.   Missing school means she is missing important school work and homework. The day she goes back to school after chemo you can see how tried she is.  I mean who wouldn't be? She goes through a lot, physically and mentally. And she doesn't want to stay home with mom and do "nothing" all day she wants to be at school learning and playing with her friends.(While my daughter does miss school you cant tell by her report card. She does very well, she just needs help in one subject and I equate that for her not being in class that day.)
    So what am I to do? How am I to balance my daughters education while she is dealing with this disease? Lucky, I am talking to her caseworker about a 504 plan for missed days and getting her a tutor for the area she needs help in. A 504 plan is a plan stating what needs to be done so she is not excluded because of her "disability" and what to do in case she gets sick.
So I might not know what is going to happen but keeping in contact with her teacher and school nurse helps to ensue that everyone is in the loop and know what to do. All we need is a plan .....

Karma at her Well check up

Taking care of Lil K

As all of you that follow me on tweet might know Lil K is undergoing chemotherapy for the LCH. We have to travel An hour and a half for her treatment and to see other health care team.

And I do mean team I feel like she is seeing at least 10 different doctors, nurses , child life workers, and social workers. It may seem like a lot but all of it is needed to make sure she is back on the road to recovery and getting everything she needs.

Since the chemo has been wreaking havoc on her system,  I decided to leave school and stay home and be a stay at home mom. There always seems like there is something to do in the house, either I need to run and get something from the store or I am cleaning non stop. I don't mind it, it does get take some time to get use to but I am finding a routine that I am used to and enjoying certain parts over other.

FAMILY

About two weeks ago when this all started I had call up Lil K’s father and had let him know about the situation and how serious things might be. At that time she would be going for an biopsy because it looks like it can be cancerous  and that the doctors will tell me about the results the next day.Now I don’t put a lot of confidence in this so called man. But I was at least hoping that this might make him at least realize how important it is to at least keep some type of contact with his daughter. He told me that he would call back; and he never did.

I hate using the term "sperm donor" but I think he deserves that title because he just don't care. I am tried of hearing I want to change and I will change. Just to get nothing. And why should I subject my daughter to that? Why should I let her know about a man(and I do use the term loosely) that doesn't give a damn to call her daughter up and find out how she is doing?

So I ain’t. I am not going to let any guy come in and hurt my daughter. I know she needs to know about who her father is, and I do understand that. And I hope that when she gets older that she can understand why he isn't part of her life. Because of all the lies and abuse that I once went through with him ...

SCHOOL

Like I have said earlier I am not attending school this semester to take care of her. I decided that this year I will be taking online classes at the local community college at my school. And then possiable thinking about finishing my degree online instead return to the college that I was currently attending. I am taking it one step at a time and putting my daughter first as always.

you feeling froggie

Even through i been living in pa for the last four years,

i  feel lost. I dont know what to do to keep my daughter culture, 

and yet since i am a "city folk" i am learning new stuff about pa wildlife  slowly but surely . 

However i am taking each day as a learning lesson, and trying to make 

the best of the sitution that i am in.

Some things around here scare the crap out of me :
like the vulture that i seen not to far from my house,

plus someone was telling me about we have snakes and bears down here.

I want to run as fast as i can in my stillettos and never look back.lol

P.S : these are some pictures that i took of the frog that jump in front of the lawn mower the other day. We decided to let him out  near the creek that wasnt to far from the house.

so me and my daughter went to the philly zoo sometime last month here are the pics. 

i just notice something how come i am in none of the pictures ? oh well....