A little bit over 6 months when I took this picture. I am so surprise to see how fast my hair is growing.
A blog about my journay through life, love and whatnots. "I love to see a young girl go out and grab the world by the lapels. Life's a bitch. You've got to go out and kick ass. " Maya Angelou
Tuesday, December 20, 2011
Growing strong
A little bit over 6 months when I took this picture. I am so surprise to see how fast my hair is growing.
Thursday, November 17, 2011
Friday, November 11, 2011
So Fall is here
Fall is here and like most moms this equates to the dreaded flu and cold season.But for a caregiver of a young person that is on chemo or in fact any person that is on chemo this means so much more. We have to deal with the unpredictably of whats coming ahead. And tackling it head on with a plan.
This is my first cold season with her on chemo and I am so scared. I remember last season when I use to walk into her daycare and saw a note posted on a door saying what communicable diseases a kid has caught and what to look for, or the notes from school saying the same thing. Any bug can be deadly to her, and winter makes you really aware of it.
This season just means a whole lot of unpredictably. In the past, when my daughter had a fever I could have given her some Tylenol and/or some cough medicine, set up a well appointment for later in the day and the next day she will be back in school. But now, a fever means a call to her oncologist an automatic trip to the ER to get X-Rays, blood work and missed days from school while she is trying to recover. Tylenol for a fever is not even a option for her with out going through these steps.
This year, like every other year, she had the flu vaccine. A couple of days later she was coughing day and night. I called her doctor and she said I could give her some cold medicine because she didn't have a fever. After a day or two of not seeing any improvement of her coughing I took her in to see a doctor. The doctor diagnosis her with indoor allergies. I never saw that coming, she never had allergies before but now she does.I believe she does have it because now the coughing has calm down a lot.
While, I try to make Chemo-Day a "special day", meaning that we have breakfast, and lunch out and after chemo we head to the movies afterwards. Between chemo, other doctors appointments and specialist she misses quit a number of days of school. Missing school means she is missing important school work and homework. The day she goes back to school after chemo you can see how tried she is. I mean who wouldn't be? She goes through a lot, physically and mentally. And she doesn't want to stay home with mom and do "nothing" all day she wants to be at school learning and playing with her friends.(While my daughter does miss school you cant tell by her report card. She does very well, she just needs help in one subject and I equate that for her not being in class that day.)
So what am I to do? How am I to balance my daughters education while she is dealing with this disease? Lucky, I am talking to her caseworker about a 504 plan for missed days and getting her a tutor for the area she needs help in. A 504 plan is a plan stating what needs to be done so she is not excluded because of her "disability" and what to do in case she gets sick.
So I might not know what is going to happen but keeping in contact with her teacher and school nurse helps to ensue that everyone is in the loop and know what to do. All we need is a plan .....
This is my first cold season with her on chemo and I am so scared. I remember last season when I use to walk into her daycare and saw a note posted on a door saying what communicable diseases a kid has caught and what to look for, or the notes from school saying the same thing. Any bug can be deadly to her, and winter makes you really aware of it.
This season just means a whole lot of unpredictably. In the past, when my daughter had a fever I could have given her some Tylenol and/or some cough medicine, set up a well appointment for later in the day and the next day she will be back in school. But now, a fever means a call to her oncologist an automatic trip to the ER to get X-Rays, blood work and missed days from school while she is trying to recover. Tylenol for a fever is not even a option for her with out going through these steps.
This year, like every other year, she had the flu vaccine. A couple of days later she was coughing day and night. I called her doctor and she said I could give her some cold medicine because she didn't have a fever. After a day or two of not seeing any improvement of her coughing I took her in to see a doctor. The doctor diagnosis her with indoor allergies. I never saw that coming, she never had allergies before but now she does.I believe she does have it because now the coughing has calm down a lot.
While, I try to make Chemo-Day a "special day", meaning that we have breakfast, and lunch out and after chemo we head to the movies afterwards. Between chemo, other doctors appointments and specialist she misses quit a number of days of school. Missing school means she is missing important school work and homework. The day she goes back to school after chemo you can see how tried she is. I mean who wouldn't be? She goes through a lot, physically and mentally. And she doesn't want to stay home with mom and do "nothing" all day she wants to be at school learning and playing with her friends.(While my daughter does miss school you cant tell by her report card. She does very well, she just needs help in one subject and I equate that for her not being in class that day.)
So what am I to do? How am I to balance my daughters education while she is dealing with this disease? Lucky, I am talking to her caseworker about a 504 plan for missed days and getting her a tutor for the area she needs help in. A 504 plan is a plan stating what needs to be done so she is not excluded because of her "disability" and what to do in case she gets sick.
So I might not know what is going to happen but keeping in contact with her teacher and school nurse helps to ensue that everyone is in the loop and know what to do. All we need is a plan .....
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| Karma at her Well check up |
Sunday, October 16, 2011
I think that this is such a cute idea
The Feisty House: Men's Shirt Fun!: I don't know about you but... I'm definitely going to 2-3 shirts from the thrift store within the next week!
Thursday, August 25, 2011
Friday, July 22, 2011
Lil k
This is here 9 th chemo therepay treatmeant.. and everything seems to be going well.
Like always, she hasn't been seeing any side affects with the treatments. This is enough for me to say thank the Lord...
But lately I can seee how the LCH is effecting her not on a medical I am sick type of way but the way she is.
She believes there is nothing that she could do. That this injury of hers is changing her life for the worst. Which is not the case. I try to explain to her that yes there are somethings that she can't do but their are still things that she can do and this is all temparory.
This time of year she would be out playing with here friends, trip every weekend to the amusement park...
But she doesn't feel like doing all that stuff because she feels weak at times. So what am I suppose to do?
I make my plan of attack and started to excute it.... so form this point on we had plan the imori not bummer summer ( and yes we had got this idea from the movie).
The plan is to plan activitys that are fun and thilliring that is cheap or ecomically, and at the same time cut down the time she spends watching tv. The plan is to not spend more then 30 dollars per week on these activity and go out at least twice a week with her...the goal is to use stuff that we already have, have free access to and whatever ... That's not inculding gas... we are going to local fairs, librarys, fairs, expo what ever we find fun at the same time of being cheap....
P.S
If you have any ideas please post them. I would love to here from you all. Also make sure to check out my daughters site luscioushair.blogspot.com ...
Like always, she hasn't been seeing any side affects with the treatments. This is enough for me to say thank the Lord...
But lately I can seee how the LCH is effecting her not on a medical I am sick type of way but the way she is.
She believes there is nothing that she could do. That this injury of hers is changing her life for the worst. Which is not the case. I try to explain to her that yes there are somethings that she can't do but their are still things that she can do and this is all temparory.
This time of year she would be out playing with here friends, trip every weekend to the amusement park...
But she doesn't feel like doing all that stuff because she feels weak at times. So what am I suppose to do?
I make my plan of attack and started to excute it.... so form this point on we had plan the imori not bummer summer ( and yes we had got this idea from the movie).
The plan is to plan activitys that are fun and thilliring that is cheap or ecomically, and at the same time cut down the time she spends watching tv. The plan is to not spend more then 30 dollars per week on these activity and go out at least twice a week with her...the goal is to use stuff that we already have, have free access to and whatever ... That's not inculding gas... we are going to local fairs, librarys, fairs, expo what ever we find fun at the same time of being cheap....
P.S
If you have any ideas please post them. I would love to here from you all. Also make sure to check out my daughters site luscioushair.blogspot.com ...
Saturday, June 25, 2011
Tuesday, May 17, 2011
I am so not looking forward to coming home today
A forgotten soul (@MissLady_Vixen) has shared a Tweet with you: "AfroDoodle: http://yfrog.com/h4zaqrxj @misslady_vixen's puppy went on a digging spree. He's so elated." --http://twitter.com/AfroDoodle/status/70534204353552384
Friday, April 22, 2011
Taking care of Lil K
Okay this is week three of chemo and things are looking better. She has been running around and jumping and back to all of her old ways. If you had ask me three weeks ago I would not of thought this possible. There was a point where the simple act of bending down was painful and heartbreaking for me to watch.
It is truly amazing how fast the chemo had work for her, She had seem better since the first treatment, And that had help put my mind at ease with this. Nobody ever thinks about wither or not their children will get cancer or become seriously sick. when I heard the word chemo I automatic though all the worst the throwing up the hair lost, being bed ridding and not being able to have a normal life. I am happily shock and surprise at the team that that she has and what she can do. And how Lil K puts on a smile most of the time to make everyone think that she is okay and whatnot.
But as a mother that knows her child I know this isn't true, I know that she is hurting inside. I know she hates needing to have to wear a back brace, or how she cant play outside with her friend at recess. So right know I do my best to give her everything she needs, and then more.
It is truly amazing how fast the chemo had work for her, She had seem better since the first treatment, And that had help put my mind at ease with this. Nobody ever thinks about wither or not their children will get cancer or become seriously sick. when I heard the word chemo I automatic though all the worst the throwing up the hair lost, being bed ridding and not being able to have a normal life. I am happily shock and surprise at the team that that she has and what she can do. And how Lil K puts on a smile most of the time to make everyone think that she is okay and whatnot.
But as a mother that knows her child I know this isn't true, I know that she is hurting inside. I know she hates needing to have to wear a back brace, or how she cant play outside with her friend at recess. So right know I do my best to give her everything she needs, and then more.
Wednesday, April 20, 2011
Taking care of Lil K
As all of you that follow me on tweet might know Lil K is undergoing chemotherapy for the LCH. We have to travel An hour and a half for her treatment and to see other health care team.
And I do mean team I feel like she is seeing at least 10 different doctors, nurses , child life workers, and social workers. It may seem like a lot but all of it is needed to make sure she is back on the road to recovery and getting everything she needs.
Since the chemo has been wreaking havoc on her system, I decided to leave school and stay home and be a stay at home mom. There always seems like there is something to do in the house, either I need to run and get something from the store or I am cleaning non stop. I don't mind it, it does get take some time to get use to but I am finding a routine that I am used to and enjoying certain parts over other.
FAMILY
About two weeks ago when this all started I had call up Lil K’s father and had let him know about the situation and how serious things might be. At that time she would be going for an biopsy because it looks like it can be cancerous and that the doctors will tell me about the results the next day.Now I don’t put a lot of confidence in this so called man. But I was at least hoping that this might make him at least realize how important it is to at least keep some type of contact with his daughter. He told me that he would call back; and he never did.
I hate using the term "sperm donor" but I think he deserves that title because he just don't care. I am tried of hearing I want to change and I will change. Just to get nothing. And why should I subject my daughter to that? Why should I let her know about a man(and I do use the term loosely) that doesn't give a damn to call her daughter up and find out how she is doing?
So I ain’t. I am not going to let any guy come in and hurt my daughter. I know she needs to know about who her father is, and I do understand that. And I hope that when she gets older that she can understand why he isn't part of her life. Because of all the lies and abuse that I once went through with him ...
SCHOOL
Like I have said earlier I am not attending school this semester to take care of her. I decided that this year I will be taking online classes at the local community college at my school. And then possiable thinking about finishing my degree online instead return to the college that I was currently attending. I am taking it one step at a time and putting my daughter first as always.
Sunday, April 10, 2011
Wednesday, February 16, 2011
okay
The bf is here and i have him stash away in my house, lol. We are starting to get things together so that we can move out and start our lives together as a family. I mean shit is hard my sister made me realize how mean i can be maybe it is because I am a asshole in the way that i talk to him. I need to learn to moderate my mouth or think before i talk and lalalalal.
I now that i have alot of shit that we need to iron out but we are getting there step by step. LEARNING about each other is the key of making this relationship work.
I now that i have alot of shit that we need to iron out but we are getting there step by step. LEARNING about each other is the key of making this relationship work.
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