A little bit over 6 months when I took this picture. I am so surprise to see how fast my hair is growing.
A blog about my journay through life, love and whatnots. "I love to see a young girl go out and grab the world by the lapels. Life's a bitch. You've got to go out and kick ass. " Maya Angelou
Tuesday, December 20, 2011
Growing strong
A little bit over 6 months when I took this picture. I am so surprise to see how fast my hair is growing.
Thursday, November 17, 2011
Friday, November 11, 2011
So Fall is here
Fall is here and like most moms this equates to the dreaded flu and cold season.But for a caregiver of a young person that is on chemo or in fact any person that is on chemo this means so much more. We have to deal with the unpredictably of whats coming ahead. And tackling it head on with a plan.
This is my first cold season with her on chemo and I am so scared. I remember last season when I use to walk into her daycare and saw a note posted on a door saying what communicable diseases a kid has caught and what to look for, or the notes from school saying the same thing. Any bug can be deadly to her, and winter makes you really aware of it.
This season just means a whole lot of unpredictably. In the past, when my daughter had a fever I could have given her some Tylenol and/or some cough medicine, set up a well appointment for later in the day and the next day she will be back in school. But now, a fever means a call to her oncologist an automatic trip to the ER to get X-Rays, blood work and missed days from school while she is trying to recover. Tylenol for a fever is not even a option for her with out going through these steps.
This year, like every other year, she had the flu vaccine. A couple of days later she was coughing day and night. I called her doctor and she said I could give her some cold medicine because she didn't have a fever. After a day or two of not seeing any improvement of her coughing I took her in to see a doctor. The doctor diagnosis her with indoor allergies. I never saw that coming, she never had allergies before but now she does.I believe she does have it because now the coughing has calm down a lot.
While, I try to make Chemo-Day a "special day", meaning that we have breakfast, and lunch out and after chemo we head to the movies afterwards. Between chemo, other doctors appointments and specialist she misses quit a number of days of school. Missing school means she is missing important school work and homework. The day she goes back to school after chemo you can see how tried she is. I mean who wouldn't be? She goes through a lot, physically and mentally. And she doesn't want to stay home with mom and do "nothing" all day she wants to be at school learning and playing with her friends.(While my daughter does miss school you cant tell by her report card. She does very well, she just needs help in one subject and I equate that for her not being in class that day.)
So what am I to do? How am I to balance my daughters education while she is dealing with this disease? Lucky, I am talking to her caseworker about a 504 plan for missed days and getting her a tutor for the area she needs help in. A 504 plan is a plan stating what needs to be done so she is not excluded because of her "disability" and what to do in case she gets sick.
So I might not know what is going to happen but keeping in contact with her teacher and school nurse helps to ensue that everyone is in the loop and know what to do. All we need is a plan .....
This is my first cold season with her on chemo and I am so scared. I remember last season when I use to walk into her daycare and saw a note posted on a door saying what communicable diseases a kid has caught and what to look for, or the notes from school saying the same thing. Any bug can be deadly to her, and winter makes you really aware of it.
This season just means a whole lot of unpredictably. In the past, when my daughter had a fever I could have given her some Tylenol and/or some cough medicine, set up a well appointment for later in the day and the next day she will be back in school. But now, a fever means a call to her oncologist an automatic trip to the ER to get X-Rays, blood work and missed days from school while she is trying to recover. Tylenol for a fever is not even a option for her with out going through these steps.
This year, like every other year, she had the flu vaccine. A couple of days later she was coughing day and night. I called her doctor and she said I could give her some cold medicine because she didn't have a fever. After a day or two of not seeing any improvement of her coughing I took her in to see a doctor. The doctor diagnosis her with indoor allergies. I never saw that coming, she never had allergies before but now she does.I believe she does have it because now the coughing has calm down a lot.
While, I try to make Chemo-Day a "special day", meaning that we have breakfast, and lunch out and after chemo we head to the movies afterwards. Between chemo, other doctors appointments and specialist she misses quit a number of days of school. Missing school means she is missing important school work and homework. The day she goes back to school after chemo you can see how tried she is. I mean who wouldn't be? She goes through a lot, physically and mentally. And she doesn't want to stay home with mom and do "nothing" all day she wants to be at school learning and playing with her friends.(While my daughter does miss school you cant tell by her report card. She does very well, she just needs help in one subject and I equate that for her not being in class that day.)
So what am I to do? How am I to balance my daughters education while she is dealing with this disease? Lucky, I am talking to her caseworker about a 504 plan for missed days and getting her a tutor for the area she needs help in. A 504 plan is a plan stating what needs to be done so she is not excluded because of her "disability" and what to do in case she gets sick.
So I might not know what is going to happen but keeping in contact with her teacher and school nurse helps to ensue that everyone is in the loop and know what to do. All we need is a plan .....
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| Karma at her Well check up |
Sunday, October 16, 2011
I think that this is such a cute idea
The Feisty House: Men's Shirt Fun!: I don't know about you but... I'm definitely going to 2-3 shirts from the thrift store within the next week!
Thursday, August 25, 2011
Friday, July 22, 2011
Lil k
This is here 9 th chemo therepay treatmeant.. and everything seems to be going well.
Like always, she hasn't been seeing any side affects with the treatments. This is enough for me to say thank the Lord...
But lately I can seee how the LCH is effecting her not on a medical I am sick type of way but the way she is.
She believes there is nothing that she could do. That this injury of hers is changing her life for the worst. Which is not the case. I try to explain to her that yes there are somethings that she can't do but their are still things that she can do and this is all temparory.
This time of year she would be out playing with here friends, trip every weekend to the amusement park...
But she doesn't feel like doing all that stuff because she feels weak at times. So what am I suppose to do?
I make my plan of attack and started to excute it.... so form this point on we had plan the imori not bummer summer ( and yes we had got this idea from the movie).
The plan is to plan activitys that are fun and thilliring that is cheap or ecomically, and at the same time cut down the time she spends watching tv. The plan is to not spend more then 30 dollars per week on these activity and go out at least twice a week with her...the goal is to use stuff that we already have, have free access to and whatever ... That's not inculding gas... we are going to local fairs, librarys, fairs, expo what ever we find fun at the same time of being cheap....
P.S
If you have any ideas please post them. I would love to here from you all. Also make sure to check out my daughters site luscioushair.blogspot.com ...
Like always, she hasn't been seeing any side affects with the treatments. This is enough for me to say thank the Lord...
But lately I can seee how the LCH is effecting her not on a medical I am sick type of way but the way she is.
She believes there is nothing that she could do. That this injury of hers is changing her life for the worst. Which is not the case. I try to explain to her that yes there are somethings that she can't do but their are still things that she can do and this is all temparory.
This time of year she would be out playing with here friends, trip every weekend to the amusement park...
But she doesn't feel like doing all that stuff because she feels weak at times. So what am I suppose to do?
I make my plan of attack and started to excute it.... so form this point on we had plan the imori not bummer summer ( and yes we had got this idea from the movie).
The plan is to plan activitys that are fun and thilliring that is cheap or ecomically, and at the same time cut down the time she spends watching tv. The plan is to not spend more then 30 dollars per week on these activity and go out at least twice a week with her...the goal is to use stuff that we already have, have free access to and whatever ... That's not inculding gas... we are going to local fairs, librarys, fairs, expo what ever we find fun at the same time of being cheap....
P.S
If you have any ideas please post them. I would love to here from you all. Also make sure to check out my daughters site luscioushair.blogspot.com ...
Saturday, June 25, 2011
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